Clinical Study
Improving Dementia Care with Hispanic/Latino Communities
Dementia is a disease that affects a persons memory, behavior, and movement. This study will co-design a Spanish-language advanced care planning (ACP) intervention for Hispanic/Latino people living with dementia and their care partners. The study will then test the impact of the intervention on Spanish-speaking Hispanic/Latino people living with Alzheimer's disease or related dementias. The participants who co-design the intervention will meet in groups on Zoom (a way to meet using technology such as a computer). Being in this part of the study requires meeting about 8 times over about 3 years. The study will then test the co-designed Spanish/Latino Alzheimer's disease or related dementia intervention with the specific population.
For more information contact:
Sara Bybee
sara.bybee@nurs.utah.edu
801-646-7569
IRB#: IRB_00177351
| PI: Sara Bybee
| Department: NURSING RESEARCH
| Approval Date: 2024-04-15 20:46:00
Study Categories: Mental Health and Well-being Studies, Neurological Studies
| Specialties: Neurology
Who can participate?
Gender: All
Age: Over 18 years old
Volunteers: Healthy Volunteers
Location: From Home
Inclusion Criteria:
- 18 years and older
- A person with at least an early stage of cognitive decline and their caregiver
- Dementia experts working full-time in the field of study for over 1 year
- Hispanic/Latino
- Spanish speaking
Exclusion Criteria:
- Previous participation in an advanced care planning intervention (ACP) for dementia
- No access to the internet
- No access to a technology device such as a computer
Will I be paid for my time?
Yes