Clinical Study
IONIS: A Study Drug to Improve Symptoms of FUS-ALS Patients
IONIS is a potential drug to reduce the body's production of the FUS protein that may contribute to ALS. Scientists and doctors need to learn the effectiveness, safety, tolerability, and breakdown of this medication to improve the symptoms of people with ALS.
For more information contact:
Teresa Janecki
Teresa.Janecki@hsc.utah.edu
801-581-3724 13724
IRB#: IRB_00144685
| PI: Summer Gibson
| Department: NEUROLOGY
| Approval Date: 2022-01-20 07:00:00
Study Categories: Neurological Studies
| Specialties: Neurology
Who can participate?
Gender: All
Age: Over 7 years old
Volunteers: Volunteers with special conditions
Location: In Person
Inclusion Criteria:
- Ages 12-65
- FUS-ALS diagnosis
- Patient has an informant or caregiver
- In-person at the University of Utah
- 5-year commitment
Will I be paid for my time?
Yes